Seth’s Odyssey
Seth is more than just a patient advocate – he helps make a difference in the community by immersing himself in the patient perspective. His passion is driven by his mother's 17-year battle with Huntington’s Disease (HD). His own health journey has provided many years of hands-on experience in fundraising, patient advocacy, volunteering, B2C content, strategic planning, event planning, and program management.
Seth loves to connect with people and build relationships across all stakeholders within the health space; ranging from life science companies to local patient advocacy organizations. He resides in Chicago, IL where you can find him running, playing or watching sports (especially the Boston Celtics), hanging out with friends, reading, or volunteering for the nonprofit he co-founded, Our Odyssey.
Accomplishments and awards Seth has achieved include the following:
Reuters Patient Champion Award Finalist (2021)
Huntington’s Disease Society of America (HDSA) Woody Guthrie award (2019)
Obtained a Master’s in Nonprofit Management at DePaul University (2018)
TEDx Natick speaker (2018)
Recognized as a Champion of Hope Nominee for Global Genes (2018)
Recipient of the Boston Celtics’ Heroes Among Us program (2016)
Huntington’s Disease Society of America (HDSA) Youth of the Year award (2015)
“He’s literally the type of person that would take a break in the middle of running a marathon to talk to you if you needed his help. I know because he’s been there for me in my darkest hour.”
“Share your story with the world. Everyone needs to see your light!”
— Wensess R.