Seth is a patient advocate and motivational speaker who is passionate about bringing his personal experience to better support the health community. He is a nonprofit leader with over 10 years of experience in patient advocacy within the health space. He has a successful track-record of building relationships across all stakeholders within the health space ranging from life science companies to local patient advocacy organizations. Additional experience includes public speaking and community engagement, including a talk at TEDxNatick, Sanofi, and Global Genes.

Over the years, Seth shifted his focus to support young people because he knew the importance of connecting with others in the community along with finding the proper resources to help deal with the everyday challenges. He recently co-founded Our Odyssey, a 501(c)(3) non-profit whose mission is to connect young adults impacted by a rare or chronic condition with social and emotional support in the hope of improving their quality of life.  Our Odyssey is a platform to give young adults an opportunity to connect and support one another through year-round programming.

Seth stays active in the Huntington’s Disease community and currently sits on the Board of Trustees for the Huntington’s Disease Youth Organization (HDYO). 

Read more about Seth here