Seth is a rare disease advocate and motivational speaker who is passionate about bringing his personal experience to better support the health community. He is a nonprofit leader with over nine years of experience in patient advocacy within the rare disease space. He has a successful track-record of public speaking and community engagement, including a talk at TEDxNatick and Sanofi.
Over the years, Seth shifted his focus to support young people because he knew the importance of connecting with others in the community along with finding the proper resources to help deal with the everyday challenges. His hope is to be a mentor for young people who face adversity by sharing how taking control of his Huntington’s Disease journey has given him opportunity, fulfillment, and hope. He is an active member of the Huntington’s Disease community and currently sits on the Board of Trustees for the Huntington’s Disease Youth Organization (HDYO). In addition, he also sits on the PRA Health Sciences Rare Disease Advisory Committee and the Rare and Undiagnosed Network Advisory Board.
Read more about Seth here