My health journey started at the age of 15 when I learned that my mom had a rare, neurological, genetic disease known as Huntington’s Disease (HD). HD slowly deteriorates a person’s physical and cognitive abilities; also being described as having ALS, Alzheimer’s and Parkinson’s all at once. There is currently no cure. The worst part about the disease is once being diagnosed, the average life span is 10 to 20 years.
Five years after learning about my mom’s diagnosis, I decided to go through genetic testing. My life changed that day; I tested positive for HD, just like my mom. At that point I knew I had two options; I could let the disease dictate my life or I could use the results as motivation to fight back. I chose the latter, immediately getting more involved in the community through fundraising, advocacy, and volunteer efforts.
Through my own personal experience, I have become a patient advocate, motivational speaker, and healthcare consultant. I am passionate about bringing my experience to better support the health community and making sure the patient voice is being heard through drug development. Although I don’t have the typical pharma/biotech background, I do have experience when it comes to patient engagement, clinical trial design and protocol, public speaking, leading nonprofits, and creating social media content strategies. I love to connect with people and have a successful track-record of building relationships across all stakeholders within the health space; ranging from life science companies to local patient advocacy organizations.