From an early age, Seth faced adversity when learning about his mother’s diagnosis of Huntington’s Disease (HD) at the age of 15. Five years later, Seth went through genetic testing and found out he tested positive for HD and may end up like his mom one day.

Throughout the lifelong odyssey of overcoming this adversity, he came to understand something profound about the meaning of life. Now he dedicates his life to helping others along their odyssey of facing adversity or roadblocks in life.

“Seth is an exceptional expert in patient advocacy and has helped develop a patient engagement strategy for our clinical development program. He engaged the community to give the team valuable insights to the challenges of living with Huntington’s Disease. Seth is more than willing to make introductions from his network of relationships with patient groups and KOLs, which has been instrumental to our vision for the clinical trial”

— Adam Good (VP of Product Development at NeuBase Therapeutics)

"Seth was frank, honest, and genuinely interested in the advancement of medical education, and physician-patient communication. He helped us appreciate the importance of communicating and supporting patients and families beyond ordering tests, reporting results, and prescribing medications."

— Vincent DiMaggio, MD (Chief Pediatric Resident, Comer Children’s Hospital, University of Chicago)

"Seth is an inspirational speaker and we are incredibly lucky to have had him speak at our HD event! His story is heartwarming and incredibly powerful and one that needs to be told on every stage. We heard wonderful feedback from our attendees who felt his passion, sincerity and his story to have a positive yet profound impact on them."

— Theresa Spelman (President of HDSA Greater NY Chapter)