Speaking Engagements

Book me today to come speak at one of your upcoming events or conferences.

Below are the previous talks I have done. Some of the topics I talk about include the following:

  • How to productively make life changing decisions
  • Living through adversity with a positive mindset
  • Finding and using proper resources and support during hardship
  • Breaking down the genetic testing experience and reducing its stigma
  • Overcoming adversity by getting involved and fighting back
  • The patient perspective in rare disease research

Understanding the Emotional Health of Rare Disease Patients from Global Genes on Vimeo.

Past Speaking Engagements

2020

  • February – Speaking Engagement at NIH Genetic Counseling Training Program
  • February – Mass BIO Rare Disease Day
  • April – Wave Life Sciences Speaking Engagement
  • May – Voyager Therapeutics Speaking Engagement
  • June – Swissnex Patient Advocacy Event

2019

  • February – Speaking Engagement at Brandeis University
  • April – Keynote Speaker at the HDSA Illinois State Conference
  • May – Annual Great Plains Rare Disease Summit
  • July – Cystinosis Research Network Conference
  • September – Global Genes RARE Patient Advocacy Summit: Romance While Rare
  • October – Sparkx Event via Spark Therapeutics
  • December – National MPS Society Annual Conference

2018

  • January – TEDxNatick Speaker
  • April – HDSA Connecticut Affiliate Education Day
  • April – HDSA Pittsburgh Chapter Education Day
  • May – Speaking to DePaul EDGE students (Freshmen)
  • May – UChicago Pediatrics Ethics Case Conference
  • May – DePaul Neuroscience Senior Seminar
  • June – Wave Life Sciences Speaking Engagement
  • June – HDSA National Convention Panel Speaker on Family Dynamics in Genetic Testing
  • July – Northwestern University Genetic Counseling Program
  • September – EHDN Conference: Everyday Life as an HD Gene Carrier and Debate Session about Confidentiality in Huntington’s Disease
  • September – RDLA Caucus Briefing
  • October – HDSA Massachusetts Chapter Education Day
  • October – Help4HD Symposium
  • October – Global Genes RARE Patient Advocacy Summit: Living with a Rare Disease: Understanding the Emotional Health of RARE Disease Patients
  • November – New England Regional Genetics Group Annual Meeting
  • December – Sanofi Genzyme R&D Conference

2017

  • June – HDSA National Convention Panel Speaker on Relationships
  • June – HDSA National Convention Panel Speaker on Relationships

2015

  • June – HDSA National Convention Panel Speaker on Genetic Testing