Speaking Engagements

Below are Seth’s upcoming and past talks. Some of the topics he talks about include the following:

  • How to productively make life changing decisions
  • Living through adversity with a positive mindset
  • Finding and using proper resources and support during hardship
  • Breaking down the genetic testing experience and reducing its stigma
  • Overcoming adversity by getting involved and fighting back

Understanding the Emotional Health of Rare Disease Patients from Global Genes on Vimeo.

Upcoming Speaking Engagements

  • May 2019 – Annual Great Plains Rare Disease Summit (May 11)
  • July 2019 – 2019 Cystinosis Research Network Conference (July 19)

Past Speaking Engagements

2019

  • February – Speaking Engagement at Brandeis University
  • April – Keynote Speaker at the HDSA Illinois State Conference

2018

  • January – TEDxNatick Speaker
  • April – HDSA Connecticut Affiliate Education Day
  • April – HDSA Pittsburgh Chapter Education Day
  • May – Speaking to DePaul EDGE students (Freshmen)
  • May – UChicago Pediatrics Ethics Case Conference
  • May – DePaul Neuroscience Senior Seminar
  • June – Wave Life Sciences Speaking Engagement
  • June – HDSA National Convention Panel Speaker on Family Dynamics in Genetic Testing
  • July – Northwestern University Genetic Counseling Program
  • September – EHDN Conference: Everyday Life as an HD Gene Carrier and Debate Session about Confidentiality in Huntington’s Disease
  • September – RDLA Caucus Briefing
  • October – HDSA Massachusetts Chapter Education Day
  • October – Help4HD Symposium
  • October – Global Genes RARE Patient Advocacy Summit: Living with a Rare Disease: Understanding the Emotional Health of RARE Disease Patients
  • November – New England Regional Genetics Group Annual Meeting
  • December – Sanofi Genzyme R&D Conference

2017

  • June – HDSA National Convention Panel Speaker on Relationships
  • June – HDSA National Convention Panel Speaker on Relationships

2015

  • June – HDSA National Convention Panel Speaker on Genetic Testing