About Me

Seth found out as a 15-year-old that his mom had a rare, neurological, genetic disease known as Huntington’s Disease (HD). HD slowly deteriorates a person’s physical and cognitive abilities; also being described as having ALS, Alzheimer’s and Parkinson’s all at once. There is currently no cure.

Five years later, Seth decided to go through genetic testing and found out he tested positive for HD, just like his mom. At that point he knew he had two options; he could let the disease dictate his life or could use the results as motivation to fight back. He chose the latter, immediately getting more involved in the community through fundraising, advocacy, and volunteer efforts.

Accomplishments and awards that Seth has achieved include the following:

  • Huntington’s Disease Society of America (HDSA) Woody Guthrie award (2019)
  • Obtained a masters in nonprofit management at DePaul University (2018)
  • TEDx Natick speaker (2018)
  • Recognized as a Champion of Hope Nominee for Global Genes (2018)
  • Recipient of the Boston Celtics’ Heroes Among Us program (2016)
  • Huntington’s Disease Society of America (HDSA) Youth of the Year award (2015)

More About Seth:

Seth was born in Boston, Massachusetts and raised in nearby Natick. He went to college at UMass Amherst, where he obtained a Bachelor of Science degree in sport management with a minor in economics.

He currently resides in Boston, MA where he works as Patient Engagement Manager for the health company Inspire.  In his free time, he enjoys hanging out with friends, playing video games, reading, playing and watching sports, volunteering, and going to the gym.