I believe in the power of young people and how each individual has the potential to make a difference in society. Over the years, I realized that young adults impacted by a rare or chronic condition had a different set of unmet needs compared to children and older adults. Yet, no one was doing anything to equip young adults the proper resources and support. It was in June of 2019, when I officially co-founded Our Odyssey, a 501(c)(3) non-profit whose mission is to connect young adults impacted by a rare or chronic condition with social and emotional support in the hope of improving their quality of life. Our Odyssey is a platform to give young adults an opportunity to connect and support one another through year-round programming. I continue to stay active in the rare disease community by connecting with patient and caregivers through social media platforms and conferences (both in-person and virtual).
Accomplishments and awards I have achieved include the following:
- Huntington’s Disease Society of America (HDSA) Woody Guthrie award (2019)
- Obtained a Master’s in Nonprofit Management at DePaul University (2018)
- TEDx Natick speaker (2018)
- Recognized as a Champion of Hope Nominee for Global Genes (2018)
- Recipient of the Boston Celtics’ Heroes Among Us program (2016)
- Huntington’s Disease Society of America (HDSA) Youth of the Year award (2015)
More About Seth:
I was born in Boston, Massachusetts and raised in nearby Natick. I went to undergrad at UMass Amherst, where I obtained a Bachelor of Science degree in sport management with a minor in economics. In 2016, I went back to school where I obtained a Master’s in Nonprofit Management from DePaul University.
Between 2016 – 2020 I went from Chicago to DC, and finally made my way back to Boston. In my free time, I enjoy hanging out with friends, playing video games, reading, playing and watching sports, volunteering, and going to the gym.